What Do You Do When Your Child is Diagnosed with a Rare Disease?

The diagnosis of a rare disease in your child is a frightening experience for parents. While uncertainties loom and information is scarce, parents wonder where to turn. In observance of Rare Disease Day, join us for a special edition of Let’s Talk Special Needs: “What Do You Do When Your Child is Diagnosed with a Rare Disease? with featured experts Cynthia Isaksen and Heidi Geissel. Learn what you need to know about special services, resources, schooling and beyond.

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